Fuck You, Hodgkin's
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I'm Lia. This is my Hodgkin's journey.

Hair Talk (#10)

7/17/2019

4 Comments

 
I feel an overwhelming urge to write about the elephant in the room: my hair. I've been getting an influx of messages pertaining to my hair, so I am here to put your curiosity to rest.

To begin, I need to go back in time to when I was first diagnosed. I can vividly recall twiddling my fingers anxiously as I awaited the news from my oncologist. She highlighted three guaranteed symptoms:
  1. Fatigue
  2. Appetite change
  3. Hair loss
I'd be dishonest if I told you that my heart did not sink in my chest. My fate was sealed. I distinctly recall suppressing my tears. Isn't it everyone's nightmare to lose their hair? After learning about my unavoidable hair-loss, I expected to be distraught for days. However, I was surprised by my own courage. Instead of crying, I tightened my fists and prepared for battle. My oncologist suggested that I cut my hair short. Think of it as a gradual transition into baldness. I took her advice.
Left = before haircut. Right = after haircut.  
I was then faced with a decision: to buzz or not to buzz. There was no way in hell that I was going to watch my hair fall out. Cancer had taken enough from me already, and I was certainly not going to let cancer be in control of my hair too. If it was inevitable that my hair was coming out, I wanted it to be on my terms. 

I marched directly to my parents' room. "Mom. It's time." In order to prevent myself from chickening out, I snagged a dull pair of scissors and gave myself a horrendously hilarious haircut. The objective was to make my hair look so unappealing that I'd have no other choice but to buzz it off. I then passed the baton over to my mom and Brian, and they did the deed. Nervous for the big reveal, I crept over to the mirror. I expected to be flooded with emotions, but instead I felt nothing. Not sadness nor anger. Not fear nor contentment. 

Fast forward to three weeks into my chemo treatments. My hair had not fallen out yet. I remember thinking to myself, "This is odd." Fast forward to 6 weeks into treatment. Not only had my hair not fallen out, but it was growing. What the f***?  Worried that this meant that my chemo was not working, I cautiously inquired. To my relief, my oncologist assured me that my lack of hair loss had nothing to do with the effectiveness of chemo. Fast forward to today. I still have my hair. I might just be the 0.001% of Hodgkin's patients whose hair  fails to fall out. 

You might be surprised to learn that I still have hair, and therefore, you might be curious as to why I frequently wear head wraps. The answer is simple. I often feel prettier in head wraps. Honestly, I don't feel bad-ass with my new haircut. I wish I could say otherwise. I miss my old hair tremendously. I miss brushing it. I miss being able to "do my hair" before going out. I impatiently look forward to the day when I will be able to run my fingers through my hair again. Until that glorious day arrives, I will have to live with the buzz.

Before I end this post, it's imperative I make it clear that my experience with my hair is unique to me. Everyone's experience with chemo hair-loss is different. Some people let their hair fall out naturally. Some people purchase wigs. Some people choose to embrace their beautiful, bald head. Some people are absolutely devastated by their hair loss, while some people could not care less. If there is one take-away from this post, I hope it's that everyone's cancer journey is one-of-a-kind. It's not always beautiful, but it's one-of-a-kind. 
Picture
All my love,
Lia 
4 Comments
Mom
7/17/2019 06:00:42 pm

Oh, Lia, if I could only look like you do!

Reply
dani
7/17/2019 06:57:38 pm

you’re confidence and drive is inspiring. keep pushing <3!!!

Reply
Michele
7/17/2019 11:56:15 pm

Dear Lia, you don't know me but I grew up with your mom. She probably was one of my first best friends. I've only caught a couple of your posts but your strength and incredible outlook reminds me so much of her. I visited her in the hospital a few times when she was very young (maybe 10?) after she had a very painful surgery to fix her scoliosis. She never complained though it was clear she was so uncomfortable. I remember bringing her Babe Ruth bars. I was beyond thrilled to see a post she shared that you kicked cancer's ass!!!! You did it with such grace too. I think i'm going to go back and read your entire blog because your wisdom, from what I have read this far, is extremely empowering. I've been battling pancreatic cancer since 2/18 and I did lose my hair but it never bothered me. It's a small price to pay and it does grow back. I hope you continue to write because you clearly have a gift for it. I see a wonderful, bright future for you. Keep shining on, you beautiful star xo Michele

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Tracy Stevenson
8/5/2019 07:04:06 pm

That’s amazing Lia. Yes, I too was wondering about your hair. Again, I am SO impressed with how you handle every difficult part of this illness. You are a warrior and you look like a beautiful one too!

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    Hi, I'm Lia. I have Hodgkin's lymphoma, but Hodgkin's lymphoma does not have me.

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